Tuesday, March 28, 2023

Day + 19 Getting Better!


Today was good, she's definitely getting better. Blood counts are going up! If you've been following Mia's journey, you know that she has not made red blood cells for the past 20 years, literally living off of people's blood donations until now. So this is pretty exciting for our family. You can see on the chart below, the + days on the left.  On Day + 16, we started to see cells grow! They are definitely growing like crazy, go Maddy's cells, engraft! Engraft! Her ANC is the measure of the number of neutrophils in the blood, they are a type of white blood cells that fight off infection. It went from 0 on day + 15 to 1940 today (+ 19) hooray!!!!! 

Science is truly amazing, the human body is so resilient. Maddy is so brave to donate her stem cells to her sister Mia, she will always be a hero to me.

Just a quick ultrasound for peace of mind, on something that had been painful and bothering Mia, but it's just something that should go away on it's own, so that is great!

You are so strong and brave Mia, everyone is so proud of you, and you have kept the best attitude and spirit out of everything that you've been through. Thank you for fighting and staying strong through this whole process. It sure helps when we have the best nurses taking such good care of you! How will they ever get us to leave?!!? We actually might get to leave the hospital soon. I'm going to admit, that will be a sad day, I will cry, for sure. Everyone is just so amazing there. What great care we have received, just another's day work ... saving lives through BMT's. It's crazy if you stop and think about it. 

Also, a huge thank you to everyone who has donated to our Go Fund Me page. Mia gets really excited thinking about being able to travel somewhere and not have to worry about getting blood transfusions every 3 weeks. It would be an epic adventure to be cured and travel somewhere fun for her, it's so good to have something to look forward to. 

Thank you so much for praying … we are watching her counts and if they continue to go up, then we will be able to leave really soon. We will see! 


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