Showing posts with label Sophie's Place. Show all posts
Showing posts with label Sophie's Place. Show all posts

Friday, June 30, 2017

Mia's 158th Blood Transfusion


Transfusion days are...long, tiring, but extremely reviving.
Each transfusion day guarantees Mia another 3 weeks
to live. She is a great reminder to Live Beautifully. 
(Just like her shirt says...from Sweet T's)


Thank you Mia for being a reminder to live joyfully even
though your circumstances are not what I wish for you.
If I could bottle up your contagious joy I would, because there are people
suffering who could use it. 


PLEASE take the time to donate blood if you can...currently from 
coast to coast there is a nation wide shortage of blood products that are
available on the shelves. Patients like Mia REQUIRE this blood to live. 
We cannot go buy her medicine at a pharmacy...her medicine is your 
blood that keeps her alive and it has to be donated from someone like you. 


The BEST part of this day was Mia being able to hang out 
with her friends. How sweet of them to visit her...they had the
best time just hanging out.


Checking out her IV pole...


So sweet.


I love hearing the laughter...especially in a hospital.


The girls got to go up to Sophie's Place and sing...
a little music therapy is good for the soul.


Thank you to Clare and Gianna for hanging out with Mia today...
Mia is so blessed to have friends like you.
Thank you God for selfless people that take the time to donate blood
so my sweet girl can live.

Thursday, March 30, 2017

Sophie's Place - Grand Opening


Mia has grown up with the Music Therapy Program 
in the hospital since she was very little.
She would request they come so she could play music
and have fun while escaping what was going on
during hospital days.



Mia and Layla jamming out...



Taking turns playing the guitar.


Drums are fun too!


The guitar got more popular thanks to 
Taylor Swift!



Mia was invited to speak a little bit about her journey
here at Cardon Children's Medical Center in the
Forever Young Zone with Steve & Barb Young.
(You might recognize him as the former QB for the 49ers)
She spoke about creating Mia's Marrow -
and her experience with music therapy.



This video is from our Instagram story...


Thanks Steve Young for helping with Sophie's Place  and 
for being so nice to Mia!


So fun!


If you haven't heard of Sophie's Place...you need to 
CLICK HERE and read about WHY it was created.
The Barton Family is absolutely amazing and breathtaking...
I truly have no words to describe their amazing work
and what they do to keep Sophie's legacy going while
helping others. No words.
Be sure to watch this video:


and read the story of this amazing family.


Sophie passed away suddenly and was a beautiful singer who sang
to children in the hospital. Sophie's brother and sister
keep her legacy going by opening Music Therapy rooms in hospitals
and Cardon Children's is the 3rd music room that has opened.


It is absolutely amazing and beyond what you can even imagine!


This is the recording studio!!
What?!?!?!?!
AMAZING


Mia jamming out...


Rockin...


Mia got to meet David O'Leary who was on the 
Amazing Race with his son, whom both
are cancer survivors. and won the all stars race in 2014!
So awesome...he said that meeting Mia
was more amazing than wining the race.
So sweet!


You can see a picture of Sophie behind Mia...
she still is there helping patients have a better treatment
in hospitals. Thank you so much to eh Barton Family who is amazing
for everything that you do for patients like Mia.
We are blessed because of you.
Mia was honored to be a part of this...
after it was over Mia said:
'I wish I could have met Sophie.'