Friday, December 15, 2017

Mia's 165 - Reaction

Mia had to cut short her 165th transfusion due to her very
first reaction to a blood product. 
This has NEVER happened before...
so it was a shock and a little scary to say the least. 
She received her first unit just fine,
but as the other unit started...a little bit after that her
eyes got swollen and it looked like hives.
It started in her right eye and then moved to the left.

So sorry Mia.
We knew this could happen but didn't really expect it to.

No pics!

We were able to donate a bunch of toys to the hospital from Dad's
flag football that was awesome!

Mia you are the bravest girl in the whole wide world that
I know. You must be strong because God gives his toughest battles
to His strongest soldiers.

Wednesday, November 29, 2017

Isagenix - Speaking Engagement

Mia should honestly be a motivational speaker.
Her story is so touching and she inspires so many different types of 
people and groups with her life.
Mia is thrilled to be given the opportunity with a speaking
engagement in front of 5-7 thousand people at the
New Year's Isagenix conference in Phoenix in January.
CLICK HERE to read their article about Mia
and giving back.

We can't wait to raise awareness of Be The Match and Mia will
be representing as a make a wish kid as well.

Funny because Mia is one of THEE most thankful people in the world.

We love Arizona for keeping Mia alive!!

Tuesday, November 21, 2017

Mia's 164th Blood Transfusion

Today is Mia’s 15 year anniversary of when we rushed her to the ER 
when she was 6 weeks old. The Tuesday before Thanksgiving she had her very
 1st blood transfusion with a hemaglobin of 2.4 - yikes! 
We are beyond THANKFUL for all the people that have donated blood
 to keep this sweet girl alive all these years. 
We have a Heart of Thankfulness for the gift of life.
Shirt by: Sweet T's

Thankful is understated.

Dr. P. - Who saved Mia's life. 
We love you and could never
say thank you enough.
15 years later...

Blessed with a surprise from big sis Alyssa and 
Lily!! These girls brought food, always a bonus!

If you could only see the scar tissue that has built up.

A huge THANK YOU to Love is in the BAG for
giving Mia a fabulous love bag filled with extra special goodies.
Blessed beyond measure and extra thankful this Thanksgiving.

Tuesday, October 31, 2017

Thank You...Hearts With Hope!

Mia was blessed with a special package in the mail by:

How sweet and thoughtful of you to think of Mia.
Let me tell you, when you have a child with a life threatening illness, 
anything that brings a smile to their face makes your heart
burst with joy. It's extra special when others think of them.

Mia LOVES movies & treats!
(partly I think because she get so tired all the time with
not making any red blood cells)
So this was the perfect gift for her!
Thank you SO much Hearts With Hope for thinking of her!

Sunday, October 29, 2017

STS - Busting Butts

Mia volunteered to the 5th AnnuaSTS
Busting Butts to Save Breasts 5K to help raise awareness
for this important issue.

Our family LOVES the Keppel family who owns
Scott's Training Systems in Chandler AZ.
If you haven't been there, you need to check it out.
It's without a doubt the most positive place to workout ever!

Mia also loves her friend Alex, her mom Melissa, a 2 time breast
cancer survivor, is who the race is in honor of.

Mia got to meet Miss Arizona at the race too!

All the sisters were there to support Scott and his mission to 
raise awareness of breast cancer.

Nice job Family!!! Way to support others!

Friday, October 27, 2017

Wish Week at Hamilton

Mia was the Make A Wish Kid at her school...
how fun, just don't drop the wish kid!!

The school's (Hamilton and Chandler High ) had a competition
and raised a ton of money for Wish kids like Mia.

Thursday, October 26, 2017

Mia's 163rd Blood Transfusion

I hate how she has to have SO many pokes. The scar tissue
on her precious hands makes me sad. 
We tried a port once, which we never wanted to get, but it clotted...
because we don't go often enough to really have one.

Sweet Mia I pray one day you will be healed so you don't have to go through
all this. I know if not now, or on this earth, then for sure in heaven.

One thing that helps getting all those pokes is the toy closet. 
It's hard for older kids to get
excited about little kid Mia usually picks out a book.

Looking forward to feeling better...!!

Friday, October 20, 2017

Be The Match @ ASU Downtown

Mia was given the opportunity to briefly share her story (of how
to be cured of DBA she would need a bone marrow transplant) to a
fabulous group of students at the ASU Downtown campus who
wants to host a bone marrow drive in Phoenix.
Mia had a blast!

Of course...she rocked it.

These students are awesome for wanting to help find not only Mia a Match,
but others who need life saving bone marrow transplants as well.
If you would like more info about Be The Match,

Saturday, October 14, 2017

Mia's Surprise 15th Birthday Party!

Friday, October 6, 2017

Mia's Transfusion #162

Anddddd we're back!

She slept for 3 hours this morning...

Up and around...

Very thankful to be alive!

Thursday, September 28, 2017

Be The Match - Scottsdale - Mathew Blades

What an awesome Be The Match event in Scottsdale hosted
at the ASU Skysong Center and put on by Mathew Blades &
Tyson Nash!

Thank you Tyson for being awesome!

Mia and 

Taking a break with some grilled cheese from the food trucks!

Thank you SO much Aubrie for taking Mia to this awesome event!