Thursday, December 31, 2015

New Year's Eve 2015

Happy New Year from Newport Beach California!!! One of Mia's favorite places ever!

Friday, December 25, 2015

Christmas 2015

Oh Christmas tree...we hope you have a guitar that was on Mia's Christmas wish list...

Thanks to the Chinn Guitar project via Sophie's Place...Mia got her guitar!! A very beautiful guitar at that!!! Wow, we are super humbled and blessed because of them, thank you so so much!! Another port for Mia, learning to play the guitar!! Rock on Mia!

Wednesday, December 23, 2015

Kindness of Strangers

Mia was picked as a service project from a Girls Running Club in Pennsylvania called Girls on the Run...they made Mia their honorary Coach, and mailed her hand made ornaments to hand out to patients at the hospital. How sweet is that!?! They even made a special one for our neighbor Ken, Thank you Shahonna for thinking of Mia!!!

Tuesday, December 22, 2015

Horsing Around

Mia's new sport...riding horses!! This girl just loves horses and always has since she was little. What a blessed girl to be able to have lessons now at Welcome Home Ranch.

Sure she loves this big guy named Buck. Two peas in a pod.

Sunday, December 20, 2015

Suns / Mercury Make A Wish night

Mia was blessed with some Phoenix Suns tickets through Make A Wish Arizona (Make A Wish is one of thee best experiences we, as a family, will have ever have...Mia picked Hawaii and we went in 2013!) Through Macy's...if you write a letter to Santa and mail it at Macy's, they will donate $1.00 to Make A Wish...and the Phoenix Mercury will match them!! Ahhhh yeah. We wrote a lot of letters!!! 

Wednesday, December 16, 2015

Mia Week

While Mia was out of school having her 134th blood transfusion...back at school the kids were busy making signs for Mia's upcoming blood drive. 

Tuesday, December 15, 2015

Doctor Appt.

This was kind of a big doctor appointment with our new Endocrinologist. Who is fabulous by the way and the doctor loves Stars Wars. So it was fitting that Dad came along...

Mia checking out the light saber in the glass case. Pretty legit. 

Monday, December 14, 2015

Blood Drive & Be The Match Drive

We had such a great day at the blood drive that Mia's school hosted in honor of her!! Words won't be able to express how thankful our family is for all this support. 

Mia with a very special guy 'Skeeter' who has had all of our girls (except Madison) in Jr. high and we love him very much!! He has always been so supportive to our family and we couldn't thank him enough for coming out to donate blood in honor of Mia. Warms the heart.

Then Dad comes along, and it melts my heart. What a dad. Sharing his life in hopes for his daughter so that she may live again for the next three weeks. 

Friday, December 11, 2015

Health & Wellness Night

We were invited to Back In Line Spine Chiropractic's Health Night...and they wanted to help Mia by having a Be The Match booth and a raffle...with all proceeds going to Mia's Marrow!! What a blessing!! We just can't believe it!!

Mia and Miss Barbara setting up the Be The Match Booth.

Tuesday, December 8, 2015

Sick of Being Sick

Even though Mia looks great, as usual...she feels terrible. She feels better now that she got a blood transfusion next Friday but she has a horrible virus...cold, sore throat fever...etc. Tis the Season. She tried making it to school but that didn't really work. However at least the school front office is rocking Be The Match for Mia...oh yeah! Represent. It's actually Mia week at school, everything is Mia-fied. 

Someone even made this wreath to auction off with proceeds going to Be The Match. It's so amazing to have so much support from her school. There are some amazing people who work there. We are truly blessed to not only have such good medical care for Mia, but awesome friend and teachers as well. Thank you all so much!

Friday, December 4, 2015

Mia's 134th Transfusion

Mia's all set to go getting her 134th (2 units) blood transfusion today. She always looks forward to her hospital day because she knows she will feel better afterwards.

If you are able to come to this December 14th blood drive / Be the Match drive...feel free!! The cheek swab is actually free ages 18-44 years old!! You could potentially save a life like Mia's. See our event page for more information. 

Homework Flow...oh yeah! Her Junior High teachers would be so proud!

Our precious Miss (Fancy) Nancy gave Mia the best Christmas ornament ever - My heart belongs to bacon!! she knows Mia so well! Thank you Miss Nancy...we love you so much!

Hmmm, I wonder who's this was/is. I hope they know they saved my life.

Psalm 73:26 - 'My flesh and my heart may fail, but God is the strength of my heart and my portion forever.' 

I love this girl! Always a smile no matter what she's going through.

Oh yeah, hey Taylor Swift, representing in the hospital!! We are so bummed Taylor Swift never saw how Mia and her sisters were gifted with tickets to her concert. you can watch it HERE

I asked Mia to caption this photo, she said: 'I'm just thankful that I get to have this, it reminds myself that I get another 3 weeks to live.' / Heartbreaking but happy at the same time. 

Heading down to the toy closet.

We are so thankful for little things, like getting to pick something out for getting poked all the time. It helps to bring a smile.

Ohhhhhhh yeah...we love #MusicTherapy - Miss Angela rocks. The first thing on Mia's Christmas list is a red guitar. Hoe fitting she swung by with her guitar.

So cute...Mia has always loved music.

We had a nice visit from our neighbor Ken. Mia always looks forward to his visits. So sweet!

After Mia's blood transfusion, she felt better blood wise, but sick other wise. Fever, sore throat...just a bad virus. Please pray she feels better we have so many blood drives / be the match drives we need to be at!!!

Wednesday, December 2, 2015

Doctor Appointment

You know it's Christmas when The Polar Express is playing in the doctor office! We love this movie!! Sure helps to take your mind off all the pokes. 

Mia's Christmas List

This is SO sweet!! I found Mia's Christmas List and had to post it...because #4 & #5 are so caring. Mia always thinks of others and always has. I'm sure no matter what, Mia will be blessed this Christmas, especially thanks to blood donors because she will be able to spend time with her family. Thank you, and Merry Christmas!!