Thursday, November 26, 2015

Thanksgiving 2015

I am thankful for blood donors, I wouldn't be here with my family at Thanksguving if it weren't for you. Thank you! 

Tuesday, November 24, 2015

Welcome Home Ranch

Mia had one of the best surprises ever last night. An early Christmas present from our neighbor Ken. Mia has always loved started back when she went with Camp Soaring Eagle to the Hole in the Wall Gang Camp in Conneticut...where she met a horse named Magic. Ever since, she has been in love with horses. Ken arranged for a horse riding lesson for Mia & little sis Madi. Here's Mia meeting Buck for the first time. 

Sunday, November 15, 2015

Fireside / Annual Affair

Mia and friend sitting fireside at the Camp Soaring Eagle Annual Affair. Mia is so blessed to be able to attend a free camp for kids with life threatening illnesses. The best part for parents is that it is medically supervised so even children with cancer taking lots of medicine can even go! CSE is the best!! 

A little practice run through of the song they sang in front of the whole dinner crowd...I fly like an Eagle... 🎤

Friday, November 13, 2015

Mia's 133rd Transfusion

Getting all ready for Mia's 133rd blood transfusion. We started off the morning drawing extra blood. Mia has been a part of a bone marrow failure study through the NIH since 2004 and they (out of the blue) requested more blood for gene testing etc. I wish I could explain it better but it's very interesting. We are so thankful for our nurse Lynette who helped us draw all the samples and get Fed Ex to come pick it up right away to be sent back to their lab in Maryland. Whew! Maybe one of these years we will fly back there and do all the testing they have been wanting to do. (Only if it involves a trip to NY - wink! wink! Right Mia?!)

Go Mia, being all brave through about 7 tubes of extra blood to be drawn...don't worry, we will replace all that they took away!!

Friday, November 6, 2015


A last minute decision... Mia was blessed to be able to go to Winterjam 2015!! We saw the Air1 booth as we were walking into arena.

When you hear music that touches your soul...

HOSA Conference / UBS

Mia was invited to share her story at the Hosa Conference in downtown Phoenix at the Convention Center to students thinking of going into the medical field.

Sharon surprised Mia with a red cape (because we all know she's a hero!) and Mia's name was embroidered on it. How thoughtful!! Thank you Sharon & Jeanette for thinking of her. That's a very special gift.