Friday, August 10, 2018

Transfusion #176


#176 


I cannot wait for a cure to 
Diamond Blackfan Anemia!


All the pokes she handles so bravely...
she's way tougher than me!

Friday, July 20, 2018

Blood Transfusion #175



Thankfully recieving a blood transfusion before the first week of school.
Then she won't miss school for hopefully at least a good 2 weeks.
That never happens but she's going to try and make it!
She still sleeps heavily during the morning with all the
Benadryl they give her from her one and only reaction to 
a blood transfusion last December. 
It's better than a reaction again though!



Looking good Mia, I know you will feel better!



You know what is the best way to feel better?
When all your friends from school show up to hang out with you!

Friday, June 29, 2018

Blood Transfusion #174 - With the News



Have you ever held your life in your hands?
Mia has.




Mia had a visit from her friend Jessie AND the News.



We are always happy to help raise awareness for


and give people a reason to donate blood.
Mia is a great reason to donate blood, and for patients just like
her who require life sustaining blood transfusions. 



Fox 10 and 12 News Both showed up.


Selfie...lol, oh girls.





Behind the Scenes...



Then they brought out 2 of Mia's blood donors...
ok TEARS.



What do you say to the people who saved your daughters life??






I just have tears. I've met these awesome guys twice now and 
all I can get out is...tears.



I'm beyond thankful that Mia can live her life 
with family and friends, ONLY thanks to blood donors.

Wednesday, June 6, 2018

Mia's Blood Trans. #173










Saturday, June 2, 2018

Make A Wish - Golf Tournament














Monday, May 14, 2018

Mia's #172


Please Take the Time to Donate Blood 
so Patients like Mia May Live.
#MiasMarrow #DonateBlood #BeTheMatch

Tuesday, May 8, 2018

TAYLOR SWIFT - is the BEST ever!




HOW did this happen?? 
I still cannot believe it...

 It all started with Mia's twitter - @pray4miraclemia
Someone who follows Mia's story and who is a benefactor to:


wanted to BLESS Mia and sisters with 4 tickets to
Taylor's Swift's #ReputationTour
staring out in ARIZONA of all places!
They wished to remain anonymous, and to this day...
we have no idea WHO this amazing nice person is.
(This just proves that there truly are good people in this world!)
 SO...a while ago, 
I was thinking of ANY possibility that these girls could somehow
get to a meet and greet??
Someone from the Banner Health Foundation - 
on behalf of Mia, just sent an email...
no promises or anything, just saying here's Mia's story,
it is what it is...she NEEDS s bone marrow transplant to be cured

(hence BE THE MATCH)

because with every blood transfusion - that saves her life -
more deadly iron is packed onto her organs, mainly the heart and
liver...which causes... the D word.

None of Mia's 3 sisters are a complete bone marrow 'MATCH'
for Mia...around the whole world...there was one lady who was
CLOSE, a 29 year old female in Europe...that was a 9/10
but Mia NEEDS a perfect match, a 10/10.
We know you are out there somewhere!

If you are reading this...did you know the all it takes is a simple 
'cheek swab' of your mouth to see if you 'match' Mia -
or someone else who needs a life saving transplant to survive.
AND to make it even better...it's FREE if you are between 
the ages of 18-44 yrs old - they will mail you a cheek swab
kit to your house, it really couldn't get any easier.
People just don't KNOW about it. 






The 45 minute drive to Glendale took 2 hours!




They almost didn't make it...but look how excited they are!!









Oh my gosh...here's a flash back to the 1989 tour!!


Look how little they were!


Naturally, I wrote a poem to say how THANKFUL I am 
to everyone who made this possible!!!
I can't explain how making MEMORIES means so much to me.
Maybe it's because I am too aware of how fleeting life
can be...every moment is special and that time spent together
should be cherished!!


Thank You - Taylor’s Team


It’s hard to find the right words that truly convey,
My thankfulness to you for a very special day.
I’m not exactly sure how it all was arranged,
All the emails and phone numbers that must have been exchanged.
To give my 4 girls an unforgettable night,
When people take time to help others the world is alright.
What a surprise to meet and greet THEE Taylor Swift,
You’ve given my girls an exceptional gift.
The memories they made at the #repTourGlendale show
Means more to my family than you will ever know.
It’s hard to watch your daughter struggle through this life,
Mia handles it with grace despite all the strife.
She truly has ‘bad blood’ who needs a cure you see…
That’s why I wanted to reach out and say thank you to Tree.
For making the meet and greet possible…and to Nikki in Nashville, 
You gave an experience to my girls who are completely thrilled!
They had the time of their lives singing and dancing at the show,
They still can’t get over it…you should see them glow.
A bone marrow transplant is what Mia needs to be cured, 
Until then she relies on blood donors - what a life she’s endured. 
Taylor Swift is more than a singer who rocks the stage,
She makes life easier to the masses, people of any age.
They will forever remember the night of May 8th,
It’ll remind them that all things are possible, just keep the faith.
Thank you, thank you, thank you…I could just cry.
It proves you can do anything if you just try.
Thank you to Taylor Swift for being so incredibly sweet,
Especially to my girls at the Glendale meet and greet!