Friday, July 21, 2017

Mia's 159th Blood Transfusion

I cannot wait until someone finds a cure to DBA.
Until then, Mia will rely on the kindness of strangers to keep her alive.

Thanks Dad for driving Mia to the hospital!!

Sweet girl, feeling better already!

Oh gosh...Mia picked up her schedule for High School!!
Wait, what??!!!

Thank you to God for getting her this far in life, and of course
to all the blood donors who have helped as well.

Thursday, July 20, 2017

In Memory Of: Chester Bennington - Linkin Park

We are SO sorry to hear about the death of Chester Bennington. 
Our hearts break for his family and children left behind.
Mia and little sis Maddie got to spend time with him at
a fundraiser for Cardon Children's Medical Center...he was
very involved with helping kids in the hospital and the music 
therapy program, also Stars of the Season.
You are gone to soon...and your kindness won't be forgotten.

Chester played with the Stone Temple Pilots and we got to meet them.
SO fun...what a great group of musicians. 

Mia was able to be in a 'thank you' music video to Linkin Park
for all their help and donations to the children's hospital.
We are so thankful for people like Linkin Park to HELP
others when they cannot repay you back.

You will be missed...prayers for your family.

Iridescent filmed at: Cardon Children's Medical Center

Saturday, July 8, 2017

Living Life - Summer 2017

When you donate give people memories with their
loved ones that will last a life time.

Such as: Paddle Boarding in Newport's the Back Bay...

SO fun!

July 4th on the beach with friends...

Watching fireworks off the Huntington Beach Pier.

Putting your feet in the Laguna Beach sand...

Sitting like a Mermaid on the rocky shores...

Looking like an Island Princess...

Watching sunsets with family...

Spending quiet time at the Ocean's Edge...

Looking for sand dollars in the sea...

Breathing in fresh air...

Living Life...!

Friday, June 30, 2017

Mia's 158th Blood Transfusion

Transfusion days are...long, tiring, but extremely reviving.
Each transfusion day guarantees Mia another 3 weeks
to live. She is a great reminder to Live Beautifully. 
(Just like her shirt says...from Sweet T's)

Thank you Mia for being a reminder to live joyfully even
though your circumstances are not what I wish for you.
If I could bottle up your contagious joy I would, because there are people
suffering who could use it. 

PLEASE take the time to donate blood if you can...currently from 
coast to coast there is a nation wide shortage of blood products that are
available on the shelves. Patients like Mia REQUIRE this blood to live. 
We cannot go buy her medicine at a pharmacy...her medicine is your 
blood that keeps her alive and it has to be donated from someone like you. 

The BEST part of this day was Mia being able to hang out 
with her friends. How sweet of them to visit her...they had the
best time just hanging out.

Checking out her IV pole...

So sweet.

I love hearing the laughter...especially in a hospital.

The girls got to go up to Sophie's Place and sing...
a little music therapy is good for the soul.

Thank you to Clare and Gianna for hanging out with Mia today...
Mia is so blessed to have friends like you.
Thank you God for selfless people that take the time to donate blood
so my sweet girl can live.

Saturday, June 10, 2017

Make A Wish - Golf Tournament

Mia walked down the red carpet at The Boulder's Golf
Course benefitting Make A Wish AZ!
You look good on the red carpet Mia!

Make A Wish needed a 'Wish Dad' who could golf...
(Well, at least TRY and golf.)
With only 2 days notice we though it would be a fun event.

We love helping out Make A Wish Arizona -
They are AWESOME!

Mia high fived the golfers as they made their way to the course..
it was a fun morning helping out Make A Wish for future wish 
families, we are so happy to help because we know first
hand how amazing our wish trip was.

Friday, June 9, 2017

Mia's 157th Blood Transfusion

We can finally get summer started thanks to 
#157 - Mia is ready to live for the the next 3weeks.

She always sleeps in the morning during her infusion.

SO tired...

Little sis came to spend the day with Mia...

Thanks to blood donors, Mia can have a chance at
life and have a fun summer with family & friends.

Surprise, big sis came to visit bearing Starbucks!

Too cute!!

Taking pics...


Saturday, May 27, 2017

Be the Match - Comicon

Mia and I both were really excited for our first Comicon
experience at the Phoenix Convention Center - for Be The Match!

Little did we know, that Mia would be IN a comic book.

How cool is that?!! It looks just like her too.
The story is really neat, about how Mia needs a match 
for a bone marrow transplant.

The Be The Match booth was right next to the blood drive...which is exactly
what 'Mia's Marrow' is all about. We point people towards 2 things that are
'FREE' - Donating Blood & Donating Bone Marrow - to
help save lives.

Thanks UBSAZ - We sure love all your awesome workers!

Mia saying thank you to blood donors, she is so sweet!