Tuesday, April 4, 2023

Day + 26 The Plan


The Plan is: to discharge Mia from the hospital. They gave Mia platelets at 2:00 am, redo labs ... platelets came back low again, they went only from 17 to 19 and the surgeon wanted more platelets to be able to remove the Hickman line so she could clot just in case of bleeding. Mia ended up with the same surgeon who placed the line, Dr. Leichty. He is SO great, we were so happy it ended up being him. 

Mia did great with the line removal, Thanks Dr. L. and the NP did a bone marrow biopsy at the same time. Multi tasking, love it! Mia ended up getting 3 bags of platelets in 1 day ... can we just thank platelet donors?!?! We actually had to wait in the morning because the Red Cross hadn't delivered them and the hospital was out. Thankfully they to the hospital quickly though. That could end up being really scary in a dire situation.

Somebody pinch us!! Is this really happening? We come to the hospital for 5 weeks, and leaving cured? Sheesh ... all DBA patients should come on over to Diamond Children's in Tucson for this opportunity to be cured using a Haploidentical protocol with a HALF match. Mia's relic today ... drumroll ... 2.4!!! WHAT?!?!?! Happy tears. Never in 20 years has it ever even registered above .5 ever, so for it to be that high is amazing. 

Mia is sad to leave her buddy Adrian in the hospital though, but he will be the next one to bust out of here cured!!! Stay strong Adrian ... we are praying for you and your family!


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