Thursday, July 14, 2016

Tucson Trip - BMT


We were referred to speak with a bone marrow transplant
specialist down in Tucson...to see if that really would be an
option for Mia. We haven't really looked into it a whole lot
because none of Mia's sisters are a complete 'match' for the best
survival rates possible. So...it never hurts to ask questions.


Mia's little Sis Maddie went with her for support...it's 
always fun to have a sister around.


Typical Mia.


Ok let's do this...we met Dr. K who is awesome! We had a great conversation about
the possibility of Mia being cured with a bone marrow match
Please see: Be The Match for more information. 
(If YOU are reading this, you could potentially save a life.)
Click Here to see how by a simple cheek swab.


We never knew Diamond Children's Hospital was down in Tucson.
We hope they can help us cure Mia of Diamond Blackfan Anemia,
God willing.


It happened to be National Hot Dog day...thanks dad for lunch!

Friday, July 8, 2016

Mia's 143rd Blood Transfusion


Mia getting ready for her 143rd, type and cross to match
the blood she will receive. Her Hgb is 9.2 - she's feeling crummy.
She could not muster up enough energy to go see a movie
with her sisters...so sad.



Pokes...pokes...and pokes...
Who likes needles?? Anyone??




She was beyond tired...she slept most of the morning which
she never does. She was exhausted.


You will will feel better soon Mia!


Shawn Mendes always helps...



Thanks Shawn Mendes for making Mia feel better!


Look what happens when you receive a little blood...
you feel alive again.


We tweeted this photo to 12News...and they put it out on all
their socail media sites...encouraging people to donate blood.
Thanks 12news...!


More sleeping time in the afternoon.


Dad is a hero, he took Mia to see the movie she missed out on because
she wasn't well enough to go.


These lovely ladies went and donated blood when they
saw Mia's photo on 12 news...
We could never say thank you enough!
Real #LifeSavers


This warms my heart!!


Thank you for this generous gift of life!

Tuesday, July 5, 2016

Learning to Surf - Living Life


Mia had a GREAT time learning how to surf the waves
at Doheny Beach in California...with surf lessons by:

Thursday, June 23, 2016

United Blood Services / VolunTEENS


What a fund morning of talking to VolunTEENS at Dignity Health / Mercy Gilbert Hospital
about the importance of donating blood. Mia knows first hand that she would not be alive
without people taking the time to donate blood.


Mia and her United Blood Services buddy Sharon work so well together!


GO Mia and Sharon!


A little Teen Jeopardy to see if they were listening, haha!




These amazing teen volunteers will go on to change the world!


We are so happy to have met them!


We know Omar will go on to do some amazing things in the medical field. 


Nice to meet you Garrette!


When you are on a poster...you have to stop and take a pic.


Hey that's me!


Mia holding a blown up photo of her when she spoke at Highland High School's pep assembly 
to encourage all the kids to donate blood!


Mia with Jeanette and Sharon, whom we love dearly.
We are beyond blessed wot have these ladies work so hard
to make sure the Arizona blood supply is stocked and ready
to go for patients like Mia.
Thank you SO much!

Friday, June 17, 2016

When you Donate Blood, Mia Gets to LIVE!


Thanks to amazing, selfless, generous people who donate blood,
Mia gets to truly live life to it's fullest.
Mia finds the beach is the best medicine there is.


She also gets to do fun things with her sisters...
like go to Sea World.
What a great photo bomb!



We make so many memories thanks to blood donors.



Watch out for that shark!


Getting soaked on the journey to Atlantis!!
SO much fun.


So much fun they went again!! #Splash


Then they wanted to get splashed thanks to Shamu!


On June 14th...it was World Blood Donor Day. Here is our thank you
photo to everyone who takes the time to donate blood,
Mia wouldn't be here without you!


Mia loves spending time with her sisters...this time
is priceless together.


What a fun time paddle boarding!









We are forever grateful for this time spent together!






Thank you blood donors for allowing this to happen!

Friday, June 10, 2016

Blood Donations




We stopped by United Blood Services so Mom could donate blood.
Mia came along for suppport.



We hope everyone who is available to donate blood, will do so
especially in this hot summer...!


We know world blood donor day is around the corner,
so we wanted to advertise...haha!

Friday, June 3, 2016

Mia's #142


Sweet girl...pale and tired.