Friday, February 3, 2017

Mia's Yearly MRI


Prayer request would be greatly appreciated...
It's that time of year...Mia's yearly T2* MRI of her heart and liver
to see how much iron has deposited on her organs from all the 
blood transfusions. (The very thing that saves her life ... ironically slowly
damages your organs.) Did you know, heart failure due to myocardial 
iron overload remains the leading cause of death in patients with 
transfusion d├ępendant anemias.
Thank goodness we have a medicine called Exjade
that Mia takes every night, (she hates it...so if you see her tell her she's 
awesome for taking it!)
It helps chelate or get rid of the extra iron that builds up in
her organs to prevent iron overload.
We always hope for the same or lower numbers from her MRI
scans (we want LOW) and we won't find out for a few weeks.
We know that God is in control.
You got this Mia, courage!


Sweet girl...it went by fast. 
They put her to sleep but next year we will try it awake!


We are SO thankful for super kind nurses who just love
on our kids...speaking of a mom with a child with a life
threatening illness. Thank you for taking care of Mia!

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